Beyond Pills Campaign
 
Having just returned from the Beyond Pills Campaign launch I am feeling inspired and positive about the future of social prescribing and the beauty of connecting with the community using an asset based approach. The Beyond Pills Campaign launched by the College of Medicine with recommendations and reports following the government’s national overprescribing review report. (National overprescribing review report - GOV.UK (www.gov.uk)
 
The Beyond Pills Campaign l addresses some of the issues described in the report. Having been on heavy doses of medication for most of my life, I know the impact and how much it takes from the person’s ability to function and thrive in life. I never knew what each specific medicine was for, or the side-effects of each one, nor the interaction being on the cocktail of such medication would impact me (both positively and negatively).
 
The campaign looks at solutions of prescribing medication as a last resort rather than the first. It describes social prescribing as one of the key factors in a person’s health and well-being. Having benefited and used an art class to not only get me off the medication, give me my life back and allow me to thrive with my health conditions I was only too happy to help and back this campaign.
 
There are six calls to action from the campaign these are;

• Improving medical and healthcare training. Social prescribing and a psychosocial approach to treatment needs to be embedded throughout the curriculum
• Addressing financial incentives within the NHS. Financial incentives in the system should centre around community health. For those patients already on a cocktail of pills, medication reviews and appropriate deprescribing need to be emphasised
• Increasing the number of social prescribing link workers. Primary Care
• Networks need to employ more link workers to enable access to social prescribing for everyone who could benefit
• Increasing support for the voluntary sector. Government departments need to fund and support voluntary initiatives that encourage healthy communities
• Empowering individuals and communities. Informing individuals about social prescribing and collaborating with volunteers involved in social prescription and local health creation and showcasing benefits
• Further systematic research. Mobilising the research community to develop a fully-fledged programme review into topics including the therapeutic efficacy of social prescribing

(Time for change: The College of Medicine launches its Beyond Pills campaign – College of Medicine and Integrated Health)
 
There are some practical tips for professionals to extend appointment times for medication reviews, stating they should be at least 30 minutes long. Whilst there are several thousand clinical pharmacists who have been asked to focus on medication reviews, there are some 8000 GP practices that still have some way to go to achieve at least one clinical pharmacist when ideally, they should be six or seven per primary care network (PCN). Whilst this seems encouraging it is still some way to start addressing the issues and really looking at the patient’s medication, why it was prescribed and if this really is the best way to treat the patient.
 
Anyone can of course ask for their medications to be reviewed, but another issue that I feel might need addressing is the electronic summary care record (SCR). Doctors can see and write in this record, but the community pharmacist can only read it. Whilst this might not seem too much of an issue it is not always stated what medications have been prescribed for what condition, thus not always helpful to the community pharmacist. While some medications can be prescribed for several different conditions and ailments, the pharmacist will not know specifically which one the doctor has prescribed the medication for. Just by ensuring the doctor adds what the medication has been prescribed for can the pharmacist get the bigger picture and see if that medication is the best, interacts the least with other medications and offer advice for the condition that may be treated very differently. If we are employing community pharmacists for medication reviews this must be implemented immediately to allow them the access and information to provide a comprehensive and trustworthy review.
 
The use of social prescribing link workers is a much more personalised way of dealing with a patient holistically. The link workers look at the practicalities of the patients’ lives, rather than just their conditions. They have the time to listen, respond, signpost and action any issues that the patient is facing which might not be medical, or could have an impact the condition. This is more realistic, supportive and productive for the patient whilst offering the personalised holistic approach that the NHS is trying to achieve. Whilst I had some reservations about link workers in the beginning, they have proved their worth especially throughout covid and lockdown.
 
My concern with link workers is the sporadic nature across the country. They are employed by PCN, local authorities and through contracts via NHS trusts. This leads itself to a postcode lottery where some areas get the gold standard and others are left struggling to bumble along. Whilst there are recommendations to employ more link workers I would like to see a standard of practice across all employed agencies to train, support and fund the link workers so that regardless of which area you live, or where they are employed in and who is funding them, it is more equal to offer consistency and equal services to all.
 
Whilst I’m realistic that not everybody will benefit from social prescribing the side-effects of an art class, football group knitting, or singing (for examples) are negligible to the side-effects of prescribing or overprescribing of medications. With creativity offering cradle to the grave projects, with no religious, cultural, sexual or prejudices of any kind it is easy to see why it can (and should) be used so widely to assist in improving the strain on the NHS.
 
Debs Teale. 
​

My life has certainly started to move in very different circles to that was it used to be 6 year ago. I still find it incredible that I have achieved as much as I have in such a short space of time. 

In November 2016 I won the South West Yorkshire Partnership 'outstanding achievement' award. I was a very reluctant participant of this award as I do not feel what I do is outstanding, or an achievement, I just do it because I feel it is the right thing to do. Needless to say after several weeks I began to accept it the award and it is now in pride of place in my cabinet along with all my girls trophies and achievements. 

In May 2017 I was a short listed candidate for the Yorkshire woman of achievement award. Woman of courage.Me courageous?? It was an amazing afternoon which I celebrated with several of my colleagues and my incredible daughters.

Also in May this year I did the talk of my life (so far) to HRH Prince Charles and over 400 delegates at the Kings fund in London. I remember when I could barely get out of bed, let alone stand in front of the future king of England telling my story. But there i was and have had some amazing inspiring feedback and offers of more talks and work to come. 

I continue to keep doing the talks, about my life, my journey, mental health awareness and anti stigma and suicide awareness and prevention. It is important to me to keep going on my plight to improve services for those who feel they do not have a voice or an identity. I will not stop now I have started. I want everyone in the system to not feel like they are a burden, that they have no hope or aspirations for life.    

I continue to work with services to make changes that need to be made. It is important and vital that I continue to make the patient/service user voice heard, to make people see that EVERYONE matters regardless of where they are and what conditions they may or may not live with. 

I have lots of exciting things coming up, more talks/events and other wonderful things, so keep watching this space and I will update when I am able to. 

Thank you to all those people who continue to support me in maintaining my life, well being and work.

Well I have been very busy lately and apologise for not putting new pictures up on my website. I will do as soon as possible. (I need to sort out the copyright on my laptop) I am now officially free from services and am no longer classed as a service user. It is hard to stop calling myself a service user as I have been that all my adult like and some of my childhood too. 

I am now working for Creative minds (how great is that?) The company that saved me is continuing to support me but in a very different role. I am still doing my voluntary work with the mental health charities that I am passionate about. I continue to do the talks informing people of my journey and enlightening them on how it feels to be a service user. I have done several talks at universities to the student nurses, occupational; therapists, social workers to name a few. I have also done talks to psychiatrists and psychologist which went down extremely well (after feeling like I haven’t been listened to most of my adult life, I now watch as they hang on to my every word.) If you would like me to do at talk at your event/course then please just ask and I will see what I can do.

I still go to my studio, not as often as I would have liked, but it is still my sanctuary. People keep asking if I will ever take art up full time, but to me art is about freedom and expression. I feel if I started to do it as a ‘job’ then it would lose the tranquillity that I feel when I do go and let myself loose on the paints. I am always looking for funding for the studio, so if anyone out there is willing to support that then please feel free to get in touch. Also if anyone wants a, tour of my studio please feel free to ask and we can sort a personal tour out.

I continue to strive for better mental health services and reducing stigma about mental ill health. I will continue to be a positive face of mental health as long as I can. Whilst I have no guarantees that I will never get ill again, I will do what I can while I can so that should I need those services again, it will be better and easier to use and access.

Please if you have any questions then just ask, I don't bite and love to speak/meet people (It has been said that I can talk the hind legs off a donkey!) It would be lovely to hear from you even if its just a hi, how are you?

Take care
Debs

Buckingham Palace Garden Party

Having received my invite for the Queens Garden Party it was a frantic time trying to find something suitable to wear. I eventually bought four dresses and several pairs of shoes and debated right up until the week before which one I was going to wear. Once decided it was a case of going and finding suitable head wear. I tried several hats on; they just weren't me, so in the end picked a discrete fascinator. (EVERYONE had something on their heads!)

The big day arrived, I was sick with excitement and nerves with a long train ride ahead of me. Having checked and rechecked my case so many times to make sure I had everything that I needed, we were off.  We booked into a lovely B&B in East London (http://www.cablestreetinn.co.uk/) our luxury felt like it had already started! We changed and set off for the palace.

Poised with invite in hand, I stood very nervously outside Buckingham Palace gates waiting to be let in. Part of me still wondering if it was some sort of a joke, another part of me nervous and excited at the same time. The gates opened early and we were off, a huge line of people all crunched up the gravel driveway towards the courtyard. All chatting and taking pictures as we inched further to the gardens. I.D. checked, invites handed in and we were walking through the palace admiring the décor and furniture that adorned the vast hallways.

Walking out through the doors to the back garden I was taken aback by how big and vast the space was. Tents erected at the side, bands playing in the distance, the royal tea tent facing you some distance away. We walked down the stairs onto the gardens. Turning to look at just how vast the palace was, it was hard to take in such splendour.

We walked around the gardens, admiring the tranquillity and amazed that such a wonderful huge space was actually in the centre of London. Having walked around the gardens we headed for the tea tent, already queues had started to form. You are handed an oblong plate drinks were dispensed (I don’t actually like tea so had apple juice instead). The sandwiches were as I had read with the crusts cut off and thinly sliced cucumber were offered with egg mayonnaise and ham and tomato, along with a selection of delicious (if not tiny) cakes. The seating was totally inadequate for the amount of people there and unless you are lucky, or are the first through the doors then it’s a case of standing and balancing your plate, bag and possibly umbrella as you try and eat.

In no time at all the lines seem to start to be made. I thought we would be behind some sort of barrier, but no we were just stood lining the route. As it happens we were stood in the Queens line. The national anthem started and the Queen and Prince Philip appeared on the steps that we had just walked down.

It seemed a long time before the Queen reached where we were stood. Although I wasn’t one of the select few that were picked to speak to and shake hands with the Queen, I was so close to her it was amazing. I was taken aback by how dainty she was. She had a constant smile on her face and was talking intently to those that had been picked to meet her. She walked passed us so we went to look at the next queue.

It is hard to know who is in what queue but it was worth a look anyway. It turned out to be Prince Philips queue. After seeing how dainty the Queen was Prince Philip was very tall in comparison. He too seemed very pleasant and chatted happily away to the guests.

After seeing Prince Philip past, we went to line in the queue for another drink. The queue was much longer this time and the sandwiches and cakes selection had vastly shrank and they were even starting to close certain parts of the tents. We got another drink and went to see if there were any seats finally free anywhere. Having walked around and looked with no luck, we resigned ourselves to stand some more. We drank our drinks and walked around some more, many people were taking photos (which we were told would not be allowed) but no one seemed to be stopping them.

It was an amazing day, one that I will remember forever. Even though I did not get to chat to the Queen (or Prince Philip or Princess Beatrice) it was still a wonderful experience. Walking out through the front of Buckingham Palace you are met by a barrage or tourists with cameras all poking through the gates, all thinking that you are someone of standing or even royalty and are snapping away with excitement that they have seen someone coming out of the palace.

My tips for the day if you are lucky enough to be invited, wear very comfortable shoes, get your drinks (and food) earlier rather than later. Look around the gardens if you get chance. Try and get into roughly the right position in the line for the procession (read the map that’s sent with the invite and you should know roughly where you should be standing.) Most importantly enjoy the day; it seems to pass really quickly (although your feet are telling you otherwise!) There was never any queues for the toilets (although the disabled one did seem to have quite a lengthy queue so beware if you are disabled, I don’t know if there were any other toilets but the ones we went were just down the palace steps to the left behind the tea tents and there was only one disabled toilet there, hence the large queue). 

Have a great day and enjoy every moment of it. 

Whose making waves with me?

Well I have been med free for 15 months now. I feel the best I have ever felt in my life. I see things in a totally different way now. Its really hard to explain to anyone that’s never suffered with mental illness just how you see things and how you view life, but I feel like I have new eyes, new brain, new feelings. I do not know if it is because I am no longer medicated so I am now seeing it through unmedicated eyes/numbed feelings, but it is a totally different outlook I have now.

I look back on my past, all the pain, anguish, hurt, being, used abused and taken for granted, and I would like to think that that would never happen again. I like to think that I have ‘learnt’ that I am worth more than that, that I am worth as much as the next person. Yes I AM PROUD OF ME AND WHO I AM. Never ever thought I would say that let alone feel it, but after 45 years I can stand here and say that I truly am proud and happy, to be me.

It hasn’t been an easy journey, as a lot of you may know, but I feel I have had that journey to help me move on to this phase in my life that is making me so passionate about helping others so much. I do not want anyone to have to go through the suffering of mental illness, but if they do, I want it to be a smoother ride than what I received. I want the services to be there to help them, I want them to be treat with respect and dignity and have their views valued.

I know this might be a pipe dream to some, but I am determined that I will change services for those who have no one to help and support them in whatever way they need. I was once called a tiny fish in a vast river, yes that’s me and I’m proud to be fighting the water and waves. Im proud to be making those waves bigger just to get noticed. Its not easy, but hey after all I have been through, this is a piece of cake.

So I ask again, whose making waves with me???

This is a blog about my website, it absolutely blew me away when I read it. Thank you so much to Tony, who saw one of my talks in Harrogate a few weeks ago. I think your the first person to ever render me speechless! 

http://bassetlawrecoveryforum.blogspot.co.uk/2014/03/the-debs-effect-painting-landscape-for.html?showComment=1396018640362#c7202502809536456345 

·         I thoroughly enjoyed your presentation and know the passion you describe very well from my work in health.

·         I thought your impassioned speech today would be perfect to send, a recording or your true self would do better, however            things being as they are, if you could prepare a document with links to your blog/website and work and send it to me in             the next days that would be great. So good to hear and see you today. Looking forward to hear more

·         Hi Debs I was inspired meeting you today, perhaps I too could learn to draw . I have sent an email requesting info on                 courses for beginners starting in January
          My inlaws sang your praises before I met you today and they were so right . 
          Your work is incredible.

·         Thanks Debs. It's great that you are so enthusiastic about sharing your story and your experiences.
          Meeting you the other day was inspirational and has given me real hope for the future.

·         Your gallery is amazing.
          You were a star in Harrogate.
          What a fantastic, inspirational day.
          Looking forward to seeing you soon.

·         Hi Debs
          How are you? 
          I just wanted to say what a fantastic day in Harrogate this week we had.
         You were a star.

·         Had a great time @TheCBSO today. Thought provoking talks all 'round. @allofusinmind

·         We’ll be joined by the amazing @debs at conference on 26 March at @thecbso Centre to talk about how                        #CreativeMinds changed her life

·         You're an inspiration, Debs.

·         #FF Debs loving what you do & 4 being super helpful

·         Hi Debs, I was thinking about you this morning and was going to look at your website. Your card is wonderful

·         debs Absolutely agree. You're helping end the stigma by talking so thank you!

·         debs You look great Debs! And your story is so inspiring - just like the rest of #CreativeMinds !

·         debs was just looking at your art work on website; v distinctive/unique style, I like!

·         debs thanks, and thank you for sharing your story yesterday. It was AMAZING and INSPIRING #ImROC

·         debs Thank you! Inspirational! #ImROC

·         debs Your presentation really moved me, thank you so much for sharing your journey I'm sure you will inspire                 many people

·         debs Having the courage to stand up You're an inspiration

·         debs thank you very much - great to meet you and thank you for your inspiration

·         debs thanks, just need to bottle you and take it home!

Having always had mental ill health from a very early age (8 was the first time I went to doctors with ‘nerves’)  I feel I am as ‘qualified’ as anyone can be about mental illness. 

I wasn’t officially diagnosed until I was about 36, but all the signs were there. The classic mood fluctuations, the highs, the lows, the deep dark moments that gripped my body. It was the highs that caused the most disruption (the lows were classed as me being ‘in a mood’ or ‘feeling sorry for myself’) and I was often getting into trouble at school because of my hyper behaviour. It was just how I was. Today I might be classed as hyperactive on a high and autistic on a low, but the truth is I have bipolar and depressive disorder. 

I am now proud of who I am, its taken a long time to accept myself and my condition. It wasn’t an easy journey and not one that everyone will feel able to do, but if I can manage after all these years there is hope to everyone else. I was told I would be on medication for the rest of my life. who was I to argue with the psychiatrist, he is the expert right?? WRONG. YOU are the expert of your own mental ill health, just as diabetics are responsible for their own well being. I’m not saying that I am ‘cured’ I know I have bipolar and depressive disorder, but I can now manage it. I can finally feel like I have the control and it doesn’t have the control over me. 

So how did I magically get to feel like this? I became creative. I (by chance) saw a leaflet for an art for wellbeing class whilst sat in the psychologist waiting room for an assessment appointment. I thought I would give it a go. I have never done art in any way shape or form, but something made me pick that leaflet up and decide to give it a go. I rang up and was asked to attend the following Tuesday. I went along and I was hooked. I was on that psychologist waiting list for 18 months before I was seen on a regular basis. Had I not have gone on this course I would have been left at home with no support or services offered whilst I was on this forever waiting list! 

Everyone else was a much better drawer than me, they all had previous experience and knew roughly what they were doing, I however was a blank canvas (which i discovered was to my benefit sometimes) I joined the full program of going to art therapy sessions and with the social aspect and the confidence from drawing something that resembled something that it was supposed to I started to feel more positive about life. Maybe it was worth ‘hanging on in there’ for.

Each week I grew stronger and stronger, more confident and settled (if that’s the right word to use with bipolar/depression) I started to feel ‘well’ I had even cut back on some of the 21 tablets a day that I was on to help me feel ‘normal’  I was chatting to people and making friends and really enjoying life. I continued to draw and even started painting too. I was hooked. I was still coping.

I had moments that tested me, when I felt I needed to go back on the medication because I felt I wasn’t functioning well without it. (having been on medication for over 25 years it was a huge step in itself to try and cut them all down, I was dealing with thoughts and feelings that I had been numbed from for most, if not all, of my adult life) Stopping all medications (which as of March 2014 I have been meds free for 15 months so far) was a huge huge step. I am realistic and know that some day I may need to go back on them, but for now I am coping and dealing with what life is throwing at me. 

I still suffer with depression and bipolar (and yes I think I will always suffer with it) but its learning to deal with it. To spot the triggers and almost talk yourself through things. I do talks about my life for the NHS (Creative minds) and recently did my biggest audience speech yet to over 300 people. The thought of speaking to over 300 people didn’t daunt me as much as the train journey to get there did. I know its not rational or easy, but then neither is mental ill health. I had plans in place to help me deal with the rush of people on a mission to get to work in the rush hour traffic. I prepared much more than the average person to deal with it. That’s what I have to do. I felt like I had conquered another ‘issue’ when I finally sat on the last train I needed to be on. Just as diabetics have to diet and/or inject, I have to plan.

Its not always easy, somethings are easier than others. I still struggle getting out of bed in a morning sometimes, but I make myself little challenges. I set myself little tasks to conquer. Each one is a huge step forward for me, which helps boost my confidence and gives me the ability to try another new ‘challenge’. Its about keep moving forward on the journey. I want to keep moving, I have existed for 45 years of my life, only living the last 2 of them. I cannot believe that this is my life now, 

I do inspirational talks to service users and medical staff, I have been to Sweden to tell of my journey and I have spoke to over 300 people about my life. In May I am going to visit Buckingham Palace (I was nominated for my inspirational and my voluntary work) I couldn’t get out of bed just over 2 years ago, my daughter was my carer, now look where I am. I know the old adage if I can do it anyone can, seriously if I can do it then I have no doubts in my mind that anyone else has the ability to transform their own lives too. What have you got to loose?